S. Von Mackensen: search on Z-Library

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1

Bone density and health-related quality of life in adult patients with severe haemophilia

M. KHAWAJI, J. ASTERMARK, S. VON MACKENSEN, K. ÅKESSON, E. BERNTORP

Journal:

Year:

2011

Language:

english

File:

PDF, 183 KB

english, 2011

2

Haemophilia & Exercise Project (HEP): The impact of 1-year sports therapy programme on physical performance in adult haemophilia patients

Czepa, D., von Mackensen, S., Hilberg, T.

Journal:

Year:

2013

Language:

english

File:

PDF, 130 KB

english, 2013

3

Die französische Pendule des 18. Jahrhunderts. Ein Bettrag zu ihrer Ikonologie. (= Neue Münchner Beiträge zur Kunstgeschichte. Bd. 9)by Klaus Maurice; Hans Sedlmayr

Review by: Ludolf von Mackensen

Journal:

Studia Leibnitiana

Year:

1969

Language:

german

File:

PDF, 287 KB

german, 1969

4

Quality of Life in Children and Families With Bleeding Disorders

Bullinger, Monika, von Mackensen, Sylvia

Journal:

Journal of Pediatric Hematology/Oncology

Year:

2003

Language:

english

File:

PDF, 207 KB

english, 2003

5

Health-related quality of life in children and adolescents with stroke, self-reports, and parent/proxies reports: Cross-sectional investigation

Bruno Neuner, Sylvia von Mackensen, Anne Krümpel, Daniela Manner, Sharon Friefeld, Sarah Nixdorf, Michael Frühwald, Gabrielle deVeber, Ulrike Nowak-Göttl

Journal:

Annals of Neurology

Year:

2011

Language:

english

File:

PDF, 282 KB

english, 2011

6

Psycho-social determinants of quality of life in children and adolescents with haemophilia—a cross-cultural approach

Monika Bullinger, Sylvia von Mackensen

Journal:

Clinical Psychology & Psychotherapy

Year:

2008

Language:

english

File:

PDF, 82 KB

english, 2008

7

160 Validation of a disease-specific quality of life questionnaire (QoL-E) for patients with myelodysplastic syndromes (MDS) in Germany

S. von Mackensen, U. Germing, K. Götze, A. Giagounidis, E. Oliva

Journal:

Leukemia Research

Year:

2011

Language:

english

File:

PDF, 53 KB

english, 2011

8

Pilot testing of the ‘Haemo-QoL’ quality of life questionnaire for haemophiliac children in six European countries

M. Bullinger, S. Von Mackensen, K. Fischer, K. Khair, C. Petersen, U. Ravens-Sieberer, A. Rocino, P. Sagnier, J. M. Tusell, M. Van Den Berg, M. Vicariot

Journal:

Year:

2002

Language:

english

File:

PDF, 75 KB

english, 2002

9

Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)

S. von Mackensen, C. Nilsson, M. Jankovic, N. Mirra, E. D'Angelo, A. Borkhardt, R. Ljung

Journal:

Pediatric Blood & Cancer

Year:

2006

Language:

english

File:

PDF, 88 KB

english, 2006

10

An Evaluation of Health-Related Quality of Life (HRQoL) in a Group of 4–7 Year-old Children with Cleft Lip and Palate

Darius Sagheri, Ulrike Ravens-Sieberer, Bert Braumann, Sylvia von Mackensen

Journal:

Journal of Orofacial Orthopedics/Fortschritte der Kieferorthopädie

Year:

2009

File:

PDF, 340 KB

2009

11

Lebensqualität von jungen Patienten mit Hämophilie in Europa

Monika Bullinger, A. Gringeri, S. von Mackensen

Journal:

Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz

Year:

2008

Language:

german

File:

PDF, 859 KB

german, 2008

12

Prevalence of weather sensitivity in Germany and Canada

Sylvia von Mackensen, Peter Hoeppe, Abdel Maarouf, Pierre Tourigny, Dennis Nowak

Journal:

International Journal of Biometeorology

Year:

2005

Language:

english

File:

PDF, 398 KB

english, 2005

13

Quality of life assessment in haemophilia

Monika Bullinger, Sylvia Von Mackensen

Journal:

Year:

2004

Language:

english

File:

PDF, 79 KB

english, 2004

14

Health status and health-related quality of life of children with haemophilia from six West European countries

A. Gringeri, S. Von Mackensen, G. Auerswald, M. Bullinger, R. Perez Garrido, E. Kellermann, K. Khair, H. Lenk, M. Vicariot, A. Villar, C. Wermes, For the Haemo-QoL Study

Journal:

Year:

2004

Language:

english

File:

PDF, 88 KB

english, 2004

15

Development and testing of an instrument to assess the Quality of Life of Children with Haemophilia in Europe (Haemo-QoL)

S. Von Mackensen, M. Bullinger, Haemo-QoL Group

Journal:

Year:

2004

Language:

english

File:

PDF, 83 KB

english, 2004

16

Cold urticaria: tolerance induction with cold baths

Y.A. Von Mackensen, M. Sticherling

Journal:

British Journal of Dermatology

Year:

2007

Language:

english

File:

PDF, 202 KB

english, 2007

17

Disease-specific quality-of-life measurement tools for haemophilia patients

E. Remor, N. L. Young, S. Von Mackensen, E. G. Lopatina

Journal:

Year:

2004

Language:

english

File:

PDF, 60 KB

english, 2004

18

The Haemo-QoL Index: developing a short measure for health-related quality of life assessment in children and adolescents with haemophilia

E. POLLAK, H. MÜHLAN, S. VON MACKENSEN, M. BULLINGER, THE HAEMO-QOL GROUP

Journal:

Year:

2006

Language:

english

File:

PDF, 128 KB

english, 2006

19

Quality of life and sports activities in patients with haemophilia

S. VON MACKENSEN

Journal:

Year:

2007

Language:

english

File:

PDF, 64 KB

english, 2007

20

Quality of life in haemophilia

A. GRINGERI, S. VON MACKENSEN

Journal:

Year:

2008

Language:

english

File:

PDF, 75 KB

english, 2008

21

Patients’, physicians’, and pharmacists’ preferences towards coagulation factor concentrates to treat haemophilia with inhibitors: results from the COHIBA Study

L. SCALONE, L. G. MANTOVANI, F. BORGHETTI, S. VON MACKENSEN, A. GRINGERI

Journal:

Year:

2009

Language:

english

File:

PDF, 184 KB

english, 2009

22

Measuring patient-reported outcomes in haemophilia clinical research

D. GLOBE, N. L. YOUNG, S. VON MACKENSEN, M. BULLINGER, J. WASSERMAN, AND ON BEHALF OF THE HEALTHRELATED QUALITY OF LIFE EXPERT WORKING GROUP OF THE INTERNATIONAL PROPHYLAXIS STUDY GROUP

Journal:

Year:

2009

Language:

english

File:

PDF, 81 KB

english, 2009

23

Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophilia – the HEP-Test-Q

S. Von MACKENSEN, D. CZEPA, M. HERBSLEB, T. HILBERG

Journal:

Year:

2010

Language:

english

File:

PDF, 91 KB

english, 2010

24

The impact of menstrual disorders on quality of life in women with inherited bleeding disorders

R. A. KADIR, M. EDLUND, S. VON MACKENSEN

Journal:

Year:

2010

Language:

english

File:

PDF, 235 KB

english, 2010

25

Quality of life in women with bleeding disorders

S. Von MACKENSEN

Journal:

Year:

2011

Language:

english

File:

PDF, 89 KB

english, 2011

26

Haemophilia & Exercise Project (HEP): subjective and objective physical performance in adult haemophilia patients – results of a cross-sectional study

D. CZEPA, S. Von MACKENSEN, T. HILBERG

Journal:

Year:

2012

Language:

english

File:

PDF, 116 KB

english, 2012

27

Health-related quality of life and psychological well-being in elderly patients with haemophilia

S. VON MACKENSEN, A. GRINGERI, S. M. SIBONI, P. M. MANNUCCI, FOR THE ITALIAN ASSOCIATION OF HAEMOPHILIA CENTRES (AICE)

Journal:

Year:

2012

Language:

english

File:

PDF, 166 KB

english, 2012

28

Quality of life in adult patients with haemophilia – a single centre experience from Sweden

K. LINDVALL, S. Von MACKENSEN, E. BERNTORP

Journal:

Year:

2012

Language:

english

File:

PDF, 237 KB

english, 2012

29

Why should we care about quality of life in persons with haemophilia?

L. ALEDORT, M. BULLINGER, S. VON MACKENSEN, J. WASSERMAN, N. L. YOUNG, D. GLOBE, ON BEHALF OF THE HEALTH RELATED QUALITY OF LIFE EXPERT WORKING GROUP OF THE INTERNATIONAL PROPHYLAXIS STUDY GROUP

Journal:

Year:

2012

Language:

english

File:

PDF, 59 KB

english, 2012

30

Challenges of Patient-Reported Outcome Assessment in Hemophilia Care—a State of the Art Review

Monika Bullinger, Denise Globe, Joan Wasserman, Nancy L. Young, Sylvia Von Mackensen

Journal:

Value in Health

Year:

2009

Language:

english

File:

PDF, 133 KB

english, 2009

31

Health status and quality of life of elderly persons with severe hemophilia born before the advent of modern replacement therapy

S. M. SIBONI, P. M. MANNUCCI, A. GRINGERI, M. FRANCHINI, A. TAGLIAFERRI, M. FERRETTI, F. C. TRADATI, E. SANTAGOSTINO, S. Von MACKENSEN, FOR THE ITALIAN ASSOCIATION OF HAEMOPHILIA CENTRES (AICE)

Journal:

Journal of Thrombosis and Haemostasis

Year:

2009

Language:

english

File:

PDF, 168 KB

english, 2009

32

A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study)

A. GRINGERI, B. LUNDIN, S. VON MACKENSEN, L. MANTOVANI, P. M. MANNUCCI, THE ESPRIT STUDY GROUP

Journal:

Journal of Thrombosis and Haemostasis

Year:

2011

Language:

english

File:

PDF, 432 KB

english, 2011

33

A new tool for the assessment of satisfaction with iron chelation therapy (ICT-Sat) for patients with β-thalassemia major

Mohsen S. Elalfy, Walid Massoud, Nayera H. Elsherif, Jonair H. Labib, Omar M. Elalfy, Safaa Elaasar, Sylvia von Mackensen

Journal:

Pediatric Blood & Cancer

Year:

2012

Language:

english

File:

PDF, 211 KB

english, 2012

34

Validation and Clinical Application of the German Version of the Palliative Care Outcome Scale

Claudia Bausewein, Martin Fegg, Lukas Radbruch, Friedemann Nauck, Silvia von Mackensen, Gian Domenico Borasio, Irene J. Higginson

Journal:

Journal of Pain and Symptom Management

Year:

2005

Language:

english

File:

PDF, 167 KB

english, 2005

35

The impact of a specific aqua-training for adult haemophilic patients – results of the WATERCISE study (WAT-QoL)

S. Von MACKENSEN, B. EIFRIG, D. ZÄCH, J. KALNINS, A. WIELOCH, W. ZELLER

Journal:

Year:

2012

Language:

english

File:

PDF, 172 KB

english, 2012

36

The impact of sport on children with haemophilia

K. Khair, A. Littley, A. Will, S. von Mackensen

Journal:

Year:

2012

Language:

english

File:

PDF, 191 KB

english, 2012

37

Haemophilia Care in Europe: the ESCHQoL study

W. Schramm, A. Gringeri, R. Ljung, K. Berger, A. Crispin, M. Bullinger, P. L. F. Giangrande, S. Von Mackensen, L. G. Mantovani, L. Nemes, M. Serban, For the eschqol study group

Journal:

Year:

2012

Language:

english

File:

PDF, 231 KB

english, 2012

38

The Sick-Building-Syndrome —Do women suffer more?: Das Sick-Building-Syndrom — Leiden Frauen mehr?

M. Bullinger, M. Morfeld, S. von Mackensen, S. Brasche

Journal:

Zentralblatt für Hygiene und Umweltmedizin

Year:

1999

Language:

english

File:

PDF, 873 KB

english, 1999

39

The Sick Building Syndrome as a subjective perception-theoretical approach and assessment methods

S. von Mackensen, M. Bullinger, M. Morfeld

Journal:

Zentralblatt für Hygiene und Umweltmedizin

Year:

1999

Language:

english

File:

PDF, 836 KB

english, 1999

40

Health-related quality of life in haemophilia patients with inhibitors and their caregivers

M. DeKoven, T. Wisniewski, A. Petrilla, N. Holot, W. C. Lee, D. L. Cooper, S. von Mackensen

Journal:

Year:

2012

Language:

english

File:

PDF, 176 KB

english, 2012

41

QL8 QUALITY OF LIFE IN HEMOPHILIC PATIENTS WITHOUT INHIBITORS: THE COCHE STUDY

L Scalone, A Gringeri, S Von Mackensen, PM Mannucci, S De Silvio, M Anastasia, F Di Stasi, LG Mantovani

Journal:

Value in Health

Year:

2005

Language:

english

File:

PDF, 56 KB

english, 2005

42

UH1 COST AND QUALITY OF LIFE OF HEMOPHILIA: COMPARISON BETWEEN PATIENTS WITH AND PATIENTS WITHOUT INHIBITORS

L Scalone, A Gringeri, PM Mannucci, S Von Mackensen, LG Mantovani

Journal:

Value in Health

Year:

2005

Language:

english

File:

PDF, 56 KB

english, 2005

43

PHM9 HOW PATIENTS WITH HAEMOPHILIA ARE SATISFIED WITH THEIR TREATMENT

S Von Mackensen, L Scalone, LG Mantovani, A Gringeri

Journal:

Value in Health

Year:

2005

Language:

english

File:

PDF, 63 KB

english, 2005

44

PHM5 ASSESSMENT OF HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH HAEMOPHILIA WITH THE NEWLY DEVELOPED HAEMOPHILIA-SPECIFIC INSTRUMENT HAEM-A-QOL

S Von Mackensen, L Scalone, S Ravera, LG Mantovani, A Gringeri

Journal:

Value in Health

Year:

2005

Language:

english

File:

PDF, 61 KB

english, 2005

45

PSY44 LINGUISTIC VALIDATION OF THE HAEMO-QOL AND HAEM-A-QOL FOR USE IN INTERNATIONAL STUDIES

L Chevallet, JH Weatherall, S Von Mackensen

Journal:

Value in Health

Year:

2008

Language:

english

File:

PDF, 68 KB

english, 2008

46

PSY44 LINGUISTIC VALIDATION OF HAEMOPHILIA-SPECIFIC PATIENT-RATED OUTCOMES (HAEMO-QOL, HAEM-A-QOL, HEMO-SAT) IN UP TO 32 LANGUAGES

S Von Mackensen, M Strandberg-Larsen, S Celerier

Journal:

Value in Health

Year:

2009

Language:

english

File:

PDF, 71 KB

english, 2009

47

PSY45 CHARACTERISTICS OF CAREGIVERS AND THEIR EXPERIENCE ASSOCIATED WITH CONGENITAL HEMOPHILIA OF INHIBITOR PATIENTS

T. Wisniewski, A.A. Petrilla, M. DeKoeven, W.C. Lee, D.L. Cooper, N. Holot, S. von Mackensen

Journal:

Value in Health

Year:

2011

Language:

english

File:

PDF, 57 KB

english, 2011

48

P01-328 - Health-related quality of life in children and adolescents with stroke, self-report and parent/proxy report: Cross sectional investigation

B. Neuner, S. von Mackensen, S. Friedfeld, G. DeVeber, U. Nowak-Göttl

Journal:

European Psychiatry

Year:

2011

Language:

english

File:

PDF, 14 KB

english, 2011

49

Content comparison of haemophilia specific patient-rated outcome measures with the international classification of functioning, disability and health (ICF, ICF-CY)

Silvia Riva, Monika Bullinger, Edda Amann, Sylvia von Mackensen

Journal:

Health and Quality of Life Outcomes

Year:

2010

Language:

english

File:

PDF, 736 KB

english, 2010

50

Pharmacotherapy of haemophilia A

Gringeri, Alessandro, Muça-Perja, Myrvet, Mangiafico, Lucia, von Mackensen, Sylvia

Journal:

Expert Opinion on Biological Therapy

Year:

2011

Language:

english

File:

PDF, 297 KB

english, 2011

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